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Correspondence |
Eastgate Team, West Cheshire Hospital, Liverpool Road, Chester CH2 1BQ
I have had some difficulties with completing this recent request from the College.
If I read the consent form that they have sent me correctly, it appears to ask for my permission for the College to publish in the reasonable opinion of the College my personal details held by them. This is information offered by me for the purpose of maintaining my membership, which would henceforth be available to everyone with an Internet connection worldwide. In addition, it is to be made available for use in future unspecified research, statistical analysis, and for use in what are mysteriously termed related activities.
All this is stated as being for furtherance of the Colleges objectives, and relates to any information that I have supplied or will supply (with the possible exception of my ethnicity or home contact details), without limit of time. No reference is made to the benefits for members - and I am unable to identify any.
The College further state that as many people should agree to this as possible because... This indicates that the College does not expect members to be able to keep up with the number of updates to the information made available as individuals. The College will be the only people who are fully aware of what they are putting out. This is a huge (and possibly expensive) risk area.
... we would then need to check, every time we make one of those 400 monthly updates, that your name in particular isnt there. If we can get agreement from pretty much everybody it will speed things up enormously. (my italics).
I am unhappy consenting for my information to be used for unspecified research at some time in the future. I am also unhappy that the College is requesting my consent for them to be sole arbiters of what references to me are to be made on their international and up-to-date website. I have an active interest in information management and technology and some understanding of the inherent risks.
Essentially, I believe that the degree of consent being requested would be unenforceable in the event of litigation. I am concerned that the College may feel safer having asked so many different consents with only one signature requested. I believe this may be an illusion of safety, and that individual members perhaps have not fully considered how much consent is required.
The final paragraph of the consent form is punctuated with the graphic of an open padlock. Maybe there is still time?
The Royal College of Psychiatrists
The Data Protection Act 1998 has proven to be somewhat of a headache for us. It prevents us from posting personal information - even just a persons name - on the website without their written permission. Since we make 400 or so updates or uploads to the website each month, the bureaucracy involved in getting specific signed forms from every person mentioned in those pages was phenomenal, and was becoming a serious impediment to keeping the site going at all. The generic consent form is our way of trying to ensure that on the one hand we comply with the Act, and on the other we keep the site usable.
The wording and the approach have been approved by the Colleges solicitors.
It is our policy to keep personal data on the website to a minimum, regardless of what permissions we hold. Home addresses and details about ethnicity are specifically excluded, and will never be posted without a request from the person concerned. We would of course remove any details on request, if any member is unhappy with the use we make of the permission.
The benefit for members is straightforward: information can be placed on the website when it is needed, without several weeks delay for permission requests to be sent out, reminders to be sent, text to be re-edited when we cant get hold of people, and so on. The website staff can get on with developing the site, rather than spending most of their time bothering members for permissions, which in most cases seem trivial to the people concerned. By way of example, we are now able to generate committee lists for Faculties, Divisions, etc. directly from the Colleges database, and we have a routine to automatically filter out those people who havent signed the generic consent.
The form offers a specific opt-out for use of the data in research, analysis and other uses, and members are welcome to make use of this opt-out if they wish. Our main concern is simply to be able to make the website work.
The system is now working well. We have received consent from 7700 members, and this has reduced the administrative overhead considerably. We would like to reduce it still further, and we would encourage any members who have not yet signed their form to do so. An FAQ giving further information is available at http://www.rcpsych.ac.uk/dpa.
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