University of Sheffield, The Longley Centre, Norwood Grange Drive, Sheffield S5 7JT, UK, email: S.A.Spence{at}Sheffield.ac.uk
See reference Livingstone-Smith,
2004, p. 217. ![]()
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The homeless mentally ill identified by the service have disengaged from the mainstream services and society. Most are from disturbed homes, nearly all have had prior contact with psychiatric services and as many as half have served prison terms. As service users, they must be actively sought out and engaged, which places specific demands upon a mental health team: flexibility of approach, patience and a willingness not to judge others values.
Though largely anecdotal, the inferences drawn in Sheffield may have parallels elsewhere, not least since individual lives can turn upon pivotal (anecdotal) encounters and those evinced by the homeless tell us much about society, psychiatry and the values of contemporary healthcare providers. Also, most of the time, the proposed model has been successful.
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Sheffield is a post-industrial city in the north of England with a population in excess of half a million. Traditionally reliant upon the steel industry, and having suffered the depredations of its collapse and that of the coal industry in the 1980s, the city has recently diversified into service provision and advanced technologies. Demographically very similar to the English average, Sheffields population is predominantly White, with a large Asian minority and many other ethnic groups represented. The citys two universities employ and educate a large proportion of the total population.
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Growing out of a general practice project piloted in the early 1990s, the service for the single homeless individual is now jointly funded by the local authority and a National Health Service (NHS) mental health trust. It comprises three full-time equivalent keyworkers (one nurse and three social workers, two of whom are half-time), a part-time secretary, as well as input from a larger teams service manager and a consultant psychiatrist (a university-funded academic) who spends two sessions per week with the team. This singles team works across Sheffield and forms the focus of this report. There is a families team too, comprising health visitors and nurses, but it is not described here.
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We have audited our clinical diagnoses annually for the past 6 years and the figures have been remarkably stable: approximately half of the homeless have depression, 20% have psychoses (including schizophrenia), 30–50% have concurrent alcohol problems, a similar number have dual diagnoses (affective or psychotic disorder plus substance misuse) and 20% primarily have personality disorders. There are also usually approximately 10% with learning disabilities and a small number of other organic syndromes (Huntingtons disease, dementias, Korsakoffs syndrome and Asperger syndrome). The majority are male (more than 80%), in their thirties; 20% will have been raised in local authority care, 10% attended special schools; most (70–90%) have used psychiatric services previously, with 40–70% having been admitted to hospital and 20–30% formally detained (under various sections of the 1983 Mental Health Act); 25–50% have history of violence; similar percentages have self-harmed and served prison sentences. Between 5 and 10% describe childhood sexual abuse but many more describe violence and unhappiness experienced as children. Most service users spend between 6 weeks and 6 months in contact with the team. The teams failed appointment rate has been 20% annually (when formally audited, over the past 3 years) and we eventually lose 25% from follow-up (often because users moved out of the city). Neither of these figures is particularly high, relative to the literature (Mitchell & Selmes, 2007).
Naturally, such a sample is likely to be highly selected. Those referred are not only homeless, they are also (in the main) referred by professionals who do not specialise in psychiatry, hence they might well comprise those most likely to attract attention, for example through disturbed behaviour, confused speech, depressed affect, demonstrable self-harm or gross neglect (Bittner, 1967). It is quite possible that those who are quietly ill are systematically under-referred. However, sometimes a minor aberration serves to reveal someone who has fallen through the net: a person with Asperger syndrome who had always lived with their parents was arrested for stealing a tin of baked beans following their deaths (there was no one left to look after them); a person with dementia arrived at a railway station, carrying an empty suitcase, with only a crumpled letter from a mental health trust to identify them; a young woman with psychotic depression was found sleeping in a graveyard (she was listening to the voice of her dead brother, who was later traced and found to be alive); another young woman drew attention to herself in a hostel because the taps in her room were running all night – she had obsessive–compulsive disorder and was washing her hands continually; a young man with schizophrenia, who had lived almost his entire adult life on the street, known to police through his well-meaning acts of generosity (he was not an offender), only attracted referral when he developed choreiform movements, etc. Many of these occurrences are singular, yet they have one thing in common – in order for these people to be seen and helped, there has to be a service that will go out to find them; they will not be encountered in conventional out-patient clinics (Timms, 1996; Appleby, 2000; Mitchell & Selmes, 2007). Over the past 6 years we have interviewed people in hostels, bed and breakfast hotels, womens refuges, squats, drop-in centres, probation offices, police stations, general practices, public houses, cathedrals, snooker halls, graveyards, parks, alleyways, stairwells, railway sidings and wrecked cars. A homeless service needs to be adaptable.
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Torture is relatively uncommon. More frequent are the casual acts of violence meted out to the homeless on the streets (e.g. beating up by groups of passers-by) or the punishments dispensed in certain subcultures (e.g. for infidelity, for refusing to take part in a criminal act). Indeed, the language of the streets is ripe with forensic codes and distinctions: people who emerge from prison commonly speak of having not friends but associates; offenders may draw distinctions between commercial crime (robbing a warehouse) and domestic crime (robbing a house), the latter often perceived as less honourable than the former.
1-Hour assessment
Given the peripatetic nature of our service users (many will have already
migrated through several cities before the homeless assessment and support
team meets them), it is crucial to obtain as much information as possible at
the first assessment, while also recognising that some material may be too
sensitive to be divulged early on. We have opted to try to include cognitive,
physical and reading assessments whenever possible (Box 1), as these may
inform diagnosis, prognosis and intervention: those with profound executive
dysfunctions may have little prospect of modulating their behaviours unaided
(Spence et al, 2004);
those with learning disabilities may gain access to more supportive
accommodations; some hostels may provide literacy services for those who are
functionally illiterate, etc.
| Box 1. The Homeless Assessment and Support Team 1-hour
assessment
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Additionally, a willingness to examine the homeless person points to the therapeutic aim of the encounter and the persons status – they are not perceived as untouchable. Even measuring blood pressure involves a moment of silence in which the homeless person is treated as any other medical patient. They are taken seriously.
Whats the worst thing youve ever done to someone else?
On the face of things, this is a terrible question to ask anyone, yet it
emerged from a need to try to estimate forensic risk in some of our more
sub-optimal interview milieu where there was always the risk of a failure of
follow-up. When sparingly used and sympathetically voiced, the question
requires users to cast their minds back, to think morally and to gauge what
they can tell their interviewer. If they do not trust the interviewer, they
will not answer the question and the interviewer rarely possesses a
priori knowledge of the event described. Nevertheless, certain patterns
can be identified: among homeless men in Sheffield this question frequently
elicits the description of a fight; a professional criminal may begin with
Are you writing this down?; for women, the worst is often a
child they left behind (It was for the best). The question
rarely elicits a response that is not suffused with some form of sadness,
either at ones own failures or those of life itself. An ex-professional
criminal became tearful when he admitted that the worst of all his crimes had
been a domestic robbery, because when he brandished a gun he felt for an
instant the terror of his female victim (I saw it in her eyes).
This incident caused him to leave his gang.
Additionally, experience alerts one to answers that are obviously statistical outliers: over 6 years, the only trivial example offered was from a man who spoke of kicking sand in another childs face at the age of 10 – it later transpired that the man had probably killed. Hence, a trivial exemplar might well indicate obfuscation.
Bad Samaritans
There is another surprise awaiting those who attempt to treat the homeless:
an apparent resistance on the part of some colleagues
(Timms, 1996). We have
encountered a marked therapeutic nihilism among ward staff.
When we admitted a woman with hebephrenic schizophrenia who had been found thought disordered in the street, we were approached by a nurse who said that he had walked past this woman every day for 3 years so why was she being treated now? Admittedly, there is ample scope for confusion here – if a person has had psychosis for years, then when is a good time to intervene? In eight roofless individuals with psychosis admitted over the first 12 months of our service, with reported duration of untreated psychosis of 1–13 years (mean=5), it was found that despite the early discharge of two users (one because of alcohol misuse, the other through a mental health tribunal), six responded to treatment, none of whom required high-dose medication; all regained permanent accommodation (Girgis & Spence, 2003). It may be the case that not treating the homeless becomes a kind of self-fulfilling prophecy (less charitably construed as prejudice). Certainly, one of the most frustrating experiences of recent years has been attempting, over many months, to locate and engage with a man with psychosis who lived along railway lines, believing he was evading a persecuting demon (he was recurrently assaulted by gangs of youths but did not blame them because he attributed their actions to their being remotely controlled by the demon), then admitting him to hospital one morning only for the nursing staff to send him home on leave the same afternoon. Some might wish to debate the semantics of home leave for people who have no home. But perhaps more salient here is the word leave.
However, there is a serious problem for in-patient staff in the current NHS – the current value system places emphasis upon the duration of admission and the need to process as many admissions as quickly as possible, aiming for care in the community. It seems as if the homeless did not really fit this concept of medicine, where the model patient seems to be a person who is not very ill, who has a home to go to and a family to care for them. Perhaps the nursing staff have a point – current in-patient systems are not designed for the homeless.
Absent fathers
Individuals who present to psychiatric services commonly have disturbed
familial relations and experiences. However, the homeless in Sheffield exhibit
one very marked feature: nearly all have no father with whom they maintained
contact during childhood and adolescence. Recurrent themes are paternal
abandonment, imprisonment, death, and divorce. Only 5% of those assessed by
the Homeless Assessment and Support Teams psychiatrist grew up with
their father. The absence of a father cannot be equated with a childs
predestination towards pathology – indeed, where a father is antisocial
the risk to the child might even be ameliorated by his departure
(Jaffee et al, 2003).
However, it seems likely that a fathers absence systematically exposes
the child to certain experiences: relative poverty, periods in local authority
care, conflict with the stepfather, physical and sexual abuse from new
relatives, undiluted consequences of maternal mental illness.
The team have seen men who were beaten and sexually abused by their
mothers boyfriends, who saw their father solely on visiting days in
prison, who were abused in residential care and rejected by the new family
once they got out, sodomized by older stepsiblings.
From a psychodynamic perspective it would be unsurprising if those subjected to such experiences subsequently had difficulty in trusting male authority figures, or if they did not trust female co-workers (akin to those females who abandoned them as children). It can be particularly hard to establish rapport with these men once they are already outside society (e.g. following periods in local authority care, in prison, or in the criminal and illegal drug using groups). The homeless assessment and support team has tried to remain available but promise little, offering tangible assistance (with accommodation) while not pretending to understand the experiences they have had. Most importantly, the team attempts to withhold judgement. In Winnicotts memorable terminology, we attempt to be good-enough objects (Phillips, 1988).
Cycle of rejection
If one permits oneself a psychodynamic consideration of the conditions of
engagement pertaining within homeless psychiatry, it seems clear
that the service provider is attempting to undo much of what families and
societies have already inflicted upon the homeless service user. Parents have
often been cruel or unreliable, strangers abusive, authority figures a source
of punishment and suspicion – it can be very difficult to make a fresh
start. Yet, the traditional medical response to such people can often seem to
recapitulate rejection (Timms,
1996): letters discharge people from follow-up when appointments
are not kept, their motives are second guessed and symptoms doubted (think of
pain or insomnia), their physical condition may make carers reluctant to touch
them or even to remain in their presence (e.g. without the window being open).
It can be very informative to ask a student to check the pulse of a malodorous
person. How should the teacher respond when the student refuses to touch the
person?
On one acute psychiatric ward, half of the in-patients who missed lunch each day (across 8 months) because they were still in bed at midday were homeless (constituting nearly all of those homeless on the ward at the time; Thomas & Spence, 2005). Such people withdraw from others and it may require considerable ingenuity and patience to establish a link. It was later established that returns from acute psychiatric wards in the trust usually constituted 30–40% of meals, in contrast to the older adult wards where the nurses took the food to the patients.
Lost in translation
The size of an ethnic community may constrain the probability of obtaining
an accurate translation in its language. In a city where many of the refugees
seen by the Homeless Assessment and Support Team originate from the Middle
East and the Horn of Africa, obtaining accurate translation poses real
difficulty. There are at least three problems.
It is difficult to design systems of healthcare where every potential language is catered for, but the reality of such limitations should at least be acknowledged (particularly where the ethnic community is itself divided; Tribe, 2002).
Homeless pharmacology
It might be anticipated that prescribing for homeless people with a mental
illness will be constrained by stark realities and risks
(Timms, 1996). Clinicians are
likely to avoid prescribing the potentially addictive or remunerative
substances (e.g. benzodiazepines, methylphenidate or procyclidine) or those
that require close monitoring (lithium, clozapine or the more recent
anticonvulsants for depression, e.g. lamotrigine). In contrast, relatively
safe antidepressants with a long half-life (e.g. fluoxetine) and depot
preparations of antipsychotics may be favoured because intermittent
non-adherence may be less disruptive.
Homeless psychodynamics
The Homeless Assessment and Support Team does not have access to the
psychotherapies. Often, this is more clinically appropriate anyway (although
there is some preliminary evidence that cognitive–behavioural therapy
may reduce violence and offending behaviours in the homeless;
Maguire, 2006). However, in
some situations most of what the team encounters can be understood in
psychodynamic terms. The concepts of transference, counter-transference,
idealisation and splitting are recurrently made manifest through the conduct
of teams and individuals dealing with this service user group. The people who
are illiterate are often treated with frank disrespect, as are those with
suicidal intentions and addictions. Sometimes the team member has to play the
advocate, witnessing and reflecting back upon the way the person was treated
by other agencies. Once a homeless person has offended someone, be they in the
housing department, the out-patient clinic or the general practice reception
area, it may be very difficult for them to access care
(Timms, 1996). Nevertheless,
we must resist the notion that only our team members understand the
person.
Playing for keeps
Multiple exigencies are likely to be influencing every attempt at follow-up
in the homeless person, for example loss of accommodation, intermittent
financial imperatives, procurement and use of illegal substances, cognitive
impairment, harassment and feuds. Hence, it is especially important for the
staff who work with homeless people to use each contact to maximum effect. A
typical pattern of engagement discernable among the old notes and records of
the homeless (in particular those who have psychosis) is the repeated deferral
of action. It is not unusual for a homeless person with a severe mental
illness to be assessed acutely (perhaps in a police cell or else in an
accident and emergency department), found to be ill but inexplicably
discharged – instead of being admitted, they are offered either a
so-called second chance (as if having an illness was a lifestyle
choice) or an out-patient appointment. When the proffered appointment is not
kept, the person is discharged from follow-up. How realistic is
such a sequence of decisions? A person who believed themselves possessed was
offered just this form of follow-up and then discharged; another person with
acute mania was given a prescription and an appointment for 2 weeks hence
– how likely was their attendance? Every opportunity to assess a
homeless person should be regarded as potentially the last.
The right stuff
The nature of the work on the homeless assessment team is such that one has
to be able to trust ones colleagues. Also, although it is trust policy
that outreach visits should not be conducted alone, in reality this is often
the case in a small team. We recommend telephone contact, agreed times of
return to base and joint working with other agencies (Box 2).
Disagreements may arise within the team – these usually concern the threshold of intervention (e.g. a medic may think mostly about risk, while a social worker may place greater emphasis upon a persons autonomy): when has a cognitively failing street-drinker declined sufficiently to warrant a guardianship order? How physically frail must he be for this to be feasible?
| Box 2. Lessons learned from the homeless in Sheffield
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Futile referrals
A difficulty often emerges when attempting to terminate involvement with
individuals who have finally obtained permanent accommodation. There is a
question of how long such a person has to reside at an address before they can
be admitted to mainstream mental health services. The consequences of failure
can be severe. With homeless people, the routine out-patient appointment and
the discharge letter when they do not attend does not seem to constitute an
adequate response, presuming, as it seems to, that non-attendance is a sign
that all is well. Our experience (and that of others) is that discharging the
person only leads to recurrent homelessness and re-introductions to our
service (Mitchell & Selmes,
2007).
Happy endings
Much of what we have rehearsed here deals with risk and failure: failure to
engage, to maintain a relationship, to access housing or to treat an illness.
However, even in this most highly selected and socially alienated city
population, there is the prospect of redemption, even if it comprises only a
place to live and a secure tenancy. For three-quarters of our service users
the function of the service is fulfilled, in that a home and necessary contact
with mainstream services is achieved
(Girgis & Spence,
2003).
Among spontaneous expression of thanks from parents of the people we have helped, we have also received a rather more ambiguous reward: an elderly man with vascular dementia said upon discharge Ill never forget what youve done for me.
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