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Female genital mutilation and mental health: how can research help the victims?

Published online by Cambridge University Press:  02 January 2018

Mustafa Alachkar*
Affiliation:
Manchester Mental Health and Social Care NHS Trust, Manchester, UK, email: malachkar@hotmail.com
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Abstract

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This is an open-access article published by the Royal College of Psychiatrists and distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
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Copyright © Royal College of Psychiatrists, 2016

In their paper on mental health problems associated with female genital mutilation (FGM) Knipscheer et al Reference Knipscheer, Vloeberghs, van der Kwaak and van den Muijsenbergh1 concluded that 'a considerable minority group, characterised by infibulated women who have a vivid memory of the circumcision and cope with their symptoms in an avoidant way, reports to experience severe consequences of genital circumcision'.

I welcome the authors' brave contribution to this crucial but under-researched topic, and appreciate their attempt at exploring the relationship between FGM and psychopathology in circumcised migrant women. However, despite their genuine acknowledgement of the limitations of their findings, it is my opinion that their paper suffers from various shortcomings which I will try to address here.

The study uses a valid definition of FGM based on a World Health Organization document, and considers the practice a violation of human rights. However, the authors approach the issue with an assumption that FGM is a traumatic event that is likely to lead to symptoms of post-traumatic stress disorder (PTSD) in victims. This assumption is evident throughout the article, especially through their use of the Harvard Trauma Questionnaire in which the item on the list of traumatic events that corresponds most closely to FGM would be 'Sexually abused or raped i.e., forced sexual activity'. Reference Mollica, Capsi-Yavin, Bollini, Truong, Tor and Lavelle2 To my mind this assumption is based on a Western view of what constitutes a traumatic event and does not take into consideration that such practice, however abhorrent it may seem, could be accepted as normal practice by its own ‘victims’ and might not be perceived by them as traumatic or as an assault.

PTSD has been seen by many researchers as a Western construct originating from the context of war and shell shock, Reference Crocq and Crocq3 and it might therefore not have strong validity in individual trauma caused by personal assault. The cross-cultural validity of PTSD has therefore been questioned. Reference Hinton and Lewis-Fernández4 However, even if we accept that PTSD is a valid construct in this population and that FGM is a traumatic event likely to give rise to PTSD, it is unsurprising that they found PTSD symptoms given that they actively looked for them. Nonetheless – and despite the small sample of 66 women – they causally link their findings to the experience of FGM. Casting further doubt on this link is that the women sampled might have been through various types of traumatic experiences, including domestic violence and sexual abuse (which are highly associated with FGM Reference Peltzer and Pengpid5 ) and political and other types of persecution, as well as traumatisation or re-traumatisation during their journey into the Netherlands and their battle to obtain asylum. All these experiences could have contributed to the levels of PTSD symptoms observed in the study and singling out FGM as the main traumatic event is therefore unjustified and unscientific.

The researchers used screening tools to assess the levels of psychological disturbance in their subjects. However, it is well known that screening tools, however validated and culturally adapted, are not diagnostic. Structured clinical interviews remain the gold standard to establish a diagnosis. Despite that, the authors discuss the occurrence of depression, anxiety and PTSD in the study participants as though they were established diagnoses. Moreover, more than half (57%) of the subjects interviewed were ‘alone’, i.e. single, widowed or divorced. This is likely to have contributed to the high levels of anxiety and depression observed in the study. It is also worth noting that 34% of the subjects had no income which begs the question of whether reporting bias and subjective exaggeration of the psychopathology scores, for reasons such as financial gain, might have affected the results. Finally in this context, political motivation and activism might have also been a source of bias, especially in view of snowball sampling being the recruitment method for the study.

This brings us to the major flaw of the study, which is the lack of a control group. This is unjustified in view of the research question posed here and, in my view, renders the findings of the study rather difficult to interpret. Certainly, from the data presented, it is difficult to arrive at any meaningful conclusions, let alone establish a causal link. A case-control study design is the gold standard to address this kind of research question, Reference Lewallen and Courtright6 and a control group of immigrant women from the same countries as the study group, but without the experience of FGM, could have easily been recruited. Another control group could have been women who were subject to FGM but continue to reside in their country of origin (that is, non-immigrants). A causal link between FGM and psychopathology still cannot be inferred, even using a case-control study.

FGM is an appalling practice that needs the collaboration of individuals, governments and non-governmental organisations if it is to be eradicated. Mental health professionals are expected to take the lead in this fight by providing research evidence that is objective and reliable. It is my belief that this is best achieved by using research studies based on robust methodologies that take into account the cultural context of individuals affected by this practice, and that do not force Western concepts and patronising preconceptions on FGM victims.

Finally, a qualitative research study that lends a voice to the victims of FGM and gives them a chance to tell their story about their true lived experiences might be far more validating of the victims' experiences, and more informative from a research viewpoint, than applying screening tools and carrying out regression analyses.

References

1 Knipscheer, J, Vloeberghs, E, van der Kwaak, A, van den Muijsenbergh, M. Mental health problems associated with female genital mutilation. BJPsych Bull 2015; 39: 273–7.Google Scholar
2 Mollica, R, Capsi-Yavin, Y, Bollini, P, Truong, T, Tor, S, Lavelle, J. The Harvard Trauma Questionnaire: validating a cross-cultural instrument for measuring torture, trauma, and post-traumatic stress disorder in Indochinese refugees. J Nerv Ment Dis 1992; 180: 111–6.Google Scholar
3 Crocq, MA, Crocq, L. From shell shock and war neurosis to post-traumatic stress disorder: a history of psychotraumatology. Dialogues Clin Neurosci 2000; 2: 4755.CrossRefGoogle Scholar
4 Hinton, DE, Lewis-Fernández, R. The cross-cultural validity of post-traumatic stress disorder: implications for DSM-5. Depress Anxiety 2011; 28: 783801.Google Scholar
5 Peltzer, K, Pengpid, S. Female genital mutilation and intimate partner violence in the Ivory Coast. BMC Women's Health 2014; 14: 13.CrossRefGoogle ScholarPubMed
6 Lewallen, S, Courtright, P. Case-Control studies. Comm Eye Health 1998; 11: 57–8.Google ScholarPubMed
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